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About the MND Foundation

Closing the gaps, raising the standard

The MND Foundation is working to improve care, support, guidance and research for people affected by Motor Neurone Disease.

We are a young, experienced and passionate charity created to listen to the MND community, identify unmet needs and help drive positive change.

Working in partnership with peer charities, the NHS, hospices and researchers, we aim to support people living with MND and their families from diagnosis through to end of life.

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Our mission

Built around three core pillars

Two people sitting together in a home setting, with one person using a wheelchair, representing care and practical support for people living with MND.
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Two adults having a supportive conversation in a calm, modern setting, representing clear guidance and information for people affected by MND.
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Why we exist

The reality of Motor Neurone Disease

MND is a progressive condition with no cure. People affected by it need timely support, coordinated care and clear guidance from diagnosis through to end of life.

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    Average life expectancy is just 27 months from diagnosis.

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    Around 50% of people diagnosed with MND die within 12 months.

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    Approximately 5,000 people are living with MND in the UK.

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    Around 1,100 people are newly diagnosed each year in the UK.

Meet the team

The people behind the Foundation

The MND Foundation is led by a passionate team committed to supporting people affected by MND and helping drive positive change across the MND community.