The MND Foundation received approval from the Charity Commission in May 2025, marking an important step in its journey to support people and families living with motor neurone disease.
Created to improve support from diagnosis onwards
Founded by Steve Redgwell and Liane Iles, the Foundation was created to help bring about the change needed for people living with MND to receive the care and support they need from diagnosis through to end of life.
The Foundation’s work is focused on improving coordinated support for people affected by MND. One of its key aims is to help provide MND hubs where there is need, with the first planned in Essex.
Developing coordinated MND care
These centres are intended to ease the pressure on families affected by MND by bringing together coordinated care and required clinical specialities in a single visit. MND nurse coordinators will lead this support, either at the centres or, where appropriate, by video call or home visit when disability is profound.
The Foundation also aims to support regular follow-up so that changes in condition or new support needs can be identified quickly, helping families access the right help and avoid unnecessary hospital visits where possible.
Supporting care, guidance and research
Alongside care and support, the Foundation is committed to funding research that targets finding a cure for people living with MND.
This approval marks the beginning of an important journey for the Foundation and the people it is here to support.
