Happy New Year everyone! 
As we all move from 2024 into 2025 I’m very excited to share that in the Redgie household we are starting our own Foundation to continue helping those suffering with MND.
As we live each day in our fight against this disease, we have experienced things we believe we need to improve to give better and stronger support to help sufferers navigate their journey however long or short that time may be.
The Foundation will continue to help fund research with the incredible Professor Rickie Patani but in addition, and at its core, we will be working to set up and preserve MND hubs or Centres of Excellence, firstly in Essex but hopefully long term on a national basis. These centres will support individuals and families by bringing all the support, help, care, advice and guidance needed into one place.
I will explain more as we progress and start to get things into place. We’re currently working our way through the process of registering the Foundation, setting up Bank accounts, raising sponsorship etc etc but hope to have the Foundation operational by the end of Q1.
You have all helped to support so many people living with MND this last two and a half years and we thank you all so much for that!! It’s been incredible how you have also helped to support Alex and his team at Challenging MND and we will continue to try to support them as we can.
We wanted to say a huge thank you for all the support you have shown us over this last few years! Everything you do genuinely helps us every day and through the Foundation we continue on our journey to improve the lives of people living with MND and funding research to finally find a cure for this horrific disease!
Many thanks, love to you all and a very Happy New Year.
